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[oregis-The German ophthalmological registry]
Jens Julian Storp1, Christopher Dicke2, Daniel Böhringer3
1Klinik für Augenheilkunde, Universitätsklinikum Münster, Domagkstr. 15, 48149, Münster, Deutschland. jens.storp@ukmuenster.de.
Die Ophthalmologie
|January 12, 2023
Summary
Germany
Area of Science:
- Ophthalmology
- Healthcare Research
- Medical Registries
Context:
- Germany lacks a national ophthalmology registry, unlike the USA's IRIS® system.
- The oregis is Germany's first disease-independent registry for ophthalmology.
- It collects comprehensive data for healthcare research.
Purpose:
- To establish a nationwide ophthalmology databank in Germany.
- To serve as the foundation for a learning healthcare system in ophthalmology.
- To enable insights into the German ophthalmological care situation.
Summary:
- The oregis registry collects anonymized clinical data from all ophthalmology subfields.
- Data is provided by participating centers, preferably automated.
- Currently, around 100 of 600 parameters are used in the pilot phase.
Impact:
- oregis has recorded data on over 1.75 million physician visits for more than 400,000 patients.
- Over 2.8 million visual acuity and intraocular pressure measurements are included.
- Continuous updates will track innovations in ophthalmological care.
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