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People with disability and privacy in precision medicine research: what's at stake?
Supriya Lal Kapur1, Maya Sabatello2
1Center for Precision Medicine and Genomics, Department of Medicine, Columbia University Irving Medical Center, New York, NY 10032, USA.
Abstract:
Re-identification from data used in precision medicine research is presumed to create minimal risk but may disproportionately impact health disparity populations. We consider plausible privacy risks and the negative ramifications thereof for people with disabilities, the largest health disparity population in the USA, and suggest measures to address these concerns.
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