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Psychological complications among patients with congenital bleeding disorders
Fatemeh Asad1, Sara Jahangarad1, Akbar Dorgalaleh2
1Department of Psychology, Bandar Abbas Branch, Islamic Azad University, Bandar Abbas, Iran.
Insights
Psychological complications like anxiety and depression are common in congenital bleeding disorders (CBDs). Early intervention improves quality of life and treatment adherence for patients with these chronic conditions.
Area of Science:
- Hematology
- Psychology
- Quality of Life Research
Background:
- Congenital bleeding disorders (CBDs) encompass a spectrum of conditions, including inherited platelet function disorders and rare/common bleeding disorders.
- These chronic conditions frequently present with psychological complications that impact patient well-being and treatment outcomes.
- Chronic pain associated with CBDs can lead to social exclusion and significantly impair emotional functioning.
Purpose of the Study:
- To highlight the prevalence and impact of psychological complications in patients with CBDs.
- To emphasize the necessity of psychological interventions for improving patient care.
- To underscore the link between early recognition of psychological issues and enhanced treatment adherence.
Main Methods:
- Review of existing literature on psychological comorbidities in congenital bleeding disorders.
- Analysis of the impact of psychological issues on treatment adherence and quality of life.
- Examination of the role of psychological interventions in managing CBDs.
Main Results:
- A significant proportion of patients with severe hemophilia A experience anxiety (approx. 33%) and depression (approx. 64%).
- Psychological distress, including anxiety and depression, negatively affects treatment adherence.
- Uncontrolled pain exacerbates psychological problems and hinders effective management.
Conclusions:
- Psychological interventions are crucial for improving the quality of life and treatment adherence in CBD patients.
- Early identification and management of psychological complications can lead to reduced bleeding episodes.
- Addressing psychological needs is integral to comprehensive care for individuals with congenital bleeding disorders.
Abstract:
Congenital bleeding disorders (CBDs), including inherited platelet function disorders and rare and common bleeding disorders, are a heterogeneous group of bleeding disorders with a wide range of clinical presentations, including psychological complications. Due to the chronic nature of CBDs, psychological complications are relatively common in these patients, which can affect treatment adherence, quality of life, and even the frequency of bleeding episodes. Chronic pain causes many psychological problems in CBDs, disrupting their social interactions, affecting all aspects of their lives, including their emotional functioning and behavior, and eventually leading to social exclusion. About one-third of patients with severe hemophilia A suffer from anxiety, 64% from depression, and 60% from other minor psychological complications such as withdrawal/depression, anxiety/depression, attention problems, and emotional problems. Anxiety, depression, and uncontrolled pain interfere with treatment adherence. For this reason, psychological interventions are needed in people with CBDs. Psychological interventions increase quality of life and treatment adherence. Therefore, early recognition of psychological complications in CBD patients may increase treatment adherence, leading to a reduction in bleeding episodes and thus an improvement in quality of life.
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