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Related Concept Videos

Archival Research01:40

Archival Research

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Some researchers gain access to large amounts of data without interacting with a single research participant. Instead, they use existing records to answer various research questions. This type of research approach is known as archival research. Archival research relies on looking at past records or data sets to look for interesting patterns or relationships. For example, a researcher might access the academic records of all individuals who enrolled in college within the past ten years and...
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Longitudinal Research02:20

Longitudinal Research

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Sometimes we want to see how people change over time, as in studies of human development and lifespan. When we test the same group of individuals repeatedly over an extended period of time, we are conducting longitudinal research. Longitudinal research is a research design in which data-gathering is administered repeatedly over an extended period of time. For example, we may survey a group of individuals about their dietary habits at age 20, retest them a decade later at age 30, and then again...
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Longitudinal Studies01:26

Longitudinal Studies

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Longitudinal studies are also widely used in other medical and social science fields. For instance, in cardiovascular research, they can monitor patients' health over decades to identify risk factors for heart disease, such as high cholesterol or smoking, and evaluate the long-term effectiveness of preventive measures. Similarly, in mental health studies, researchers might follow individuals from adolescence into adulthood to understand the development and progression of conditions like...
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Purpose of Health Records II01:19

Purpose of Health Records II

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Health records serve various essential purposes in the healthcare system. Here are some key purposes:
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Microbial Classification System01:24

Microbial Classification System

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Classification is the process of organizing organisms into hierarchically inclusive groups based on their phenotypic similarities or evolutionary relationships. A species comprises one or more strains, and closely related species are grouped into genera. Genera are further classified into families, families into orders, orders into classes, and so forth, up to the domain level, which is the broadest taxonomic rank derived from a combination of phenotypic and genotypic data.The nomenclature of...
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Documentation in Long-Term and Home Healthcare Setting01:29

Documentation in Long-Term and Home Healthcare Setting

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Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
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On the Long-term Archiving of Research Data.

Cyril Pernet1, Claus Svarer2, Ross Blair3

  • 1Neurobiology Research Unit, Rigshospitalet, Copenhagen, Denmark. wamcyril@gmail.com.

Neuroinformatics
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Summary
This summary is machine-generated.

The FAIR data sharing principles aim for accessible research data, but repository costs are unsustainable. This study explores cost-effective cold data storage solutions while preserving data accessibility and FAIR principles.

Keywords:
CostData sharingFAIRLong-term archiving

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Area of Science:

  • Data Science
  • Information Science
  • Digital Preservation

Background:

  • The FAIR (Findable, Accessible, Interoperable, Reusable) data principles promote large-scale data sharing.
  • Current data repository models face challenges due to escalating monetary and ecological costs of maintaining accessible datasets.
  • The need for sustainable data management strategies is critical for long-term research integrity.

Discussion:

  • Investigating optimal strategies for 'cold data' storage, transitioning datasets from active access to offline archives.
  • Addressing the critical question of when to move data to cold storage to balance accessibility with resource constraints.
  • Examining methods for cold data archiving that uphold FAIR principles, ensuring data remains discoverable and usable.

Key Insights:

  • Implementing tiered data storage solutions can significantly reduce repository costs.
  • Defining clear policies for data disposition and cold archiving is essential for sustainable data management.
  • Responsibility for cold archiving and long-term preservation needs clear delineation among stakeholders.

Outlook:

  • Developing automated or semi-automated systems for identifying and migrating data to cold storage.
  • Exploring innovative, low-cost, and environmentally friendly cold storage technologies.
  • Fostering collaborative frameworks for shared cold archiving infrastructure and long-term data stewardship.