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Patient-Centered Access to IBD Care: A Qualitative Study.

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Canadian inflammatory bowel disease (IBD) patients face significant challenges accessing specialized care. Understanding patient experiences is crucial for improving healthcare access and outcomes for IBD in Canada.

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Area of Science:

  • Gastroenterology
  • Health Services Research
  • Patient Experience

Background:

  • Canada exhibits the highest global age-adjusted incidence and prevalence rates of inflammatory bowel disease (IBD).
  • Increasing IBD patient volumes and resource limitations create challenges in accessing timely specialty care.
  • This study addresses the gap by exploring the healthcare access experiences of individuals living with IBD.

Purpose of the Study:

  • To understand the experiences and perspectives of persons living with IBD regarding healthcare access.
  • To identify barriers and facilitators influencing specialty care access for IBD patients in Canada.
  • To inform improvements in IBD care delivery at provincial and national levels.

Main Methods:

  • Qualitative descriptive approach utilizing 14 focus groups with 63 IBD patients (≥18 years).
  • Participants were purposively sampled from rural and urban Canadian gastroenterology clinics and communities.
  • Thematic analysis was employed to examine patient experiences with IBD specialty care access.

Main Results:

  • Three primary themes emerged: the necessity of patient partnership in care, the adaptation of IBD care access to individual contexts, and the importance of patient-defined priorities guiding care access.
  • Key findings highlight the need for a patient-centered approach to healthcare delivery.
  • Participant demographics included 65% female with a mean age of 48.39 years, primarily from urban/suburban regions.

Conclusions:

  • Accessing IBD specialty care in Canada is complex and significantly impacted by healthcare system structures and processes.
  • A patient-centered exploration of barriers and facilitators is vital for improving IBD care access.
  • Understanding and addressing patient perspectives can lead to better IBD care at both provincial and national levels.