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Integrated care for children living with complex care needs: an evolutionary concept analysis
Lorna Cassidy1, Mary Brigid Quirke1, Denise Alexander1
1School of Nursing, Midwifery and Health Systems, University College Dublin, Health Sciences Building, Belfield, Dublin 4, Ireland.
Integrated care for children with complex care needs (CCNs) involves specialized, individualized services co-produced by interdisciplinary teams, families, and children, supported by digital health. Further research is needed to measure its effectiveness.
Area of Science:
- Healthcare Management
- Pediatric Healthcare
- Health Informatics
Background:
- Children with complex care needs (CCNs) require enhanced healthcare access, communication, and support.
- Integrated care is crucial for delivering family-centered services to children with CCNs.
- Existing definitions of integrated care lack conceptual clarity for this population.
Purpose of the Study:
- To clarify the definition of integrated care for children with complex care needs.
- To identify key components and delivery mechanisms of integrated care for CCNs.
Main Methods:
- An evolutionary concept analysis was performed on existing literature.
- The analysis aimed to define integrated care within the context of children with CCNs.
Main Results:
- Integrated care for children with CCNs is defined as highly specialized, individualized care.
- This care is delivered within or across services and co-produced by interdisciplinary teams, families, and children.
- Digital health technologies support the delivery of integrated care for children with CCNs.
Conclusions:
- There is a need for further research to develop measurement tools for integrated care.
- Variations in study designs, outcomes, and populations necessitate standardized assessment methods.
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