Improving Outcome-Driven Care in Multiple Myeloma Using Patient-Reported Outcomes: A Qualitative Evaluation Study
Christine Bennink1,2, Marleen de Mul3, Marjolein van der Klift4
1Department of Haematology, Erasmus University Medical Center, Dr. Molewaterplein 40, 3015 GD, Rotterdam, The Netherlands. c.bennink@erasmusmc.nl.
The Patient
|February 15, 2023
Summary
Implementing outcome-driven care for multiple myeloma patients is feasible. Integrating patient-reported outcomes into shared decision-making and removing data barriers are key to improving quality of life and treatment.
Area of Science:
- Oncology
- Health Services Research
- Patient-Reported Outcomes
Background:
- Multiple myeloma presents a significant burden on patients' quality of life.
- Current care models require evaluation for improved patient outcomes.
- Outcome-driven care aims to enhance decision-making, professional learning, and contracting.
Purpose of the Study:
- To evaluate the implementation of outcome-driven care in multiple myeloma treatment.
- To assess the integration of patient-reported outcomes (PROs) into clinical practice.
- To identify facilitators and barriers to outcome-driven care in Dutch hospitals.
Main Methods:
- Qualitative study design utilizing semi-structured interviews.
- Conducted interviews with 46 participants: 15 patients, 16 healthcare professionals, and 15 stakeholders.
- Thematic analysis of interview data, clustered around the objectives of outcome-driven care.
Main Results:
- Patients are willing to complete PROs, but integration into shared decision-making is limited.
- Barriers to data collection and exchange include privacy laws, IT limitations, and lack of data standards.
- Outcome-driven reimbursement models are not yet established, despite the potential for cost-effectiveness.
Conclusions:
- Outcome-driven multiple myeloma care is feasible with successful integration of PROs and shared decision-making.
- Addressing legal and technical obstacles for data collection is crucial.
- Health insurers need to adapt reimbursement plans to support outcome-driven care.
More Related Videos
09:41An Organotypic High Throughput System for Characterization of Drug Sensitivity of Primary Multiple Myeloma Cells
Published on: July 15, 2015
8.7K
09:57Comprehensive Protocol to Sample and Process Bone Marrow for Measuring Measurable Residual Disease and Leukemic Stem Cells in Acute Myeloid Leukemia
Published on: March 5, 2018
29.5K
Related Concept Videos
01:11Guidelines for Writing Outcome
2.9K
When developing expected outcomes for a patient care plan, the nurse should adhere to the following recommendations:
Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care...
Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care...
2.9K
01:13Patient-centered Care
2.1K
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
2.1K
02:56Treatment Resistant Cancers
3.4K
Cancer is the second leading cause of death in the United States. A cancer cell is genetically unstable and hence can mutate faster. They can also modify their microenvironment and escape immune surveillance. The difficulties in treating cancer are further compounded by the emergence of rapid resistance to anticancer drugs. The most common ways to attain resistance in cancer cells include alteration in drug transport and metabolism, modification of drug target, elevated DNA damage response, or...
3.4K
01:27Peripheral Artery Disease III: Interprofessional Care
17
Peripheral Artery Disease (PAD) is characterized by narrowed arteries that diminish blood flow to the extremities. Effective management of PAD requires an interprofessional approach involving various healthcare professionals. The critical aspects of interprofessional care for PAD patients focus on risk factor modification, drug therapy, exercise therapy, nutrition therapy, critical limb ischemia care, and interventional radiology and surgical procedures.The primary treatment goal for PAD...
17
01:26Methods of Documentation II: POMR
1.0K
The Problem-Oriented Medical Record (POMR) revolutionized medical record-keeping by introducing a systematic approach focusing on the patient's problems rather than merely listing symptoms. Dr. Lawrence Weed's introduction of this method in the 1960s marked a significant advancement in medical documentation. The POMR framework consists of four key components: the database, problem list, plan of care, and progress notes.
1.0K
01:21Cancer Survival Analysis
408
Cancer survival analysis focuses on quantifying and interpreting the time from a key starting point, such as diagnosis or the initiation of treatment, to a specific endpoint, such as remission or death. This analysis provides critical insights into treatment effectiveness and factors that influence patient outcomes, helping to shape clinical decisions and guide prognostic evaluations. A cornerstone of oncology research, survival analysis tackles the challenges of skewed, non-normally...
408