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The shiny new object: Deconstructing the patient-oriented paradigm in health sciences
Pier-Luc Turcotte1, Dave Holmes2, Stuart J Murray3
1School of Rehabilitation Sciences, Faculty of Health Sciences, University of Ottawa, Ottawa, Ontario, Canada.
Patient-oriented research, or patient and public engagement, is a growing trend in health sciences. However, this approach may inadvertently reinforce existing power structures, hindering truly participatory and emancipatory research practices.
Area of Science:
- Health Sciences
- Medical Research
- Public Health
Background:
- The patient-oriented research paradigm, also termed patient and public engagement, is increasingly prevalent in health sciences.
- While seemingly beneficial, this approach may lead to unintended negative consequences and become an ideological 'good'.
- Its current form may diverge from its origins in more radical patient engagement methods, such as critical participatory research.
Purpose of the Study:
- To critically deconstruct the dominant narrative surrounding patient-oriented research in health sciences.
- To expose the unexamined assumptions and perceived inherent 'goodness' of this research discourse.
Main Methods:
- Employing a deconstructive approach, inspired by Derrida's philosophy.
- Analyzing the underlying presuppositions and claims of patient-oriented discourse.
Main Results:
- Deconstruction reveals how patient-oriented research can reinforce existing biomedical and economic power structures.
- The approach risks depoliticizing genuinely participatory research elements.
- It is presented as an evolution of evidence-based practice, obscuring its potential limitations.
Conclusions:
- Patient-oriented research should be critically examined rather than accepted as inherently positive.
- To be truly effective, patient-oriented research must resist assimilation into dominant paradigms and affirm its radical, participatory, and emancipatory potential.
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