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Collaboration for Developing and Sustaining Community Dementia-Friendly Initiatives: A Realist Evaluation.

Marjolein Thijssen1,2,3, Maud J L Graff1,2, Monique A S Lexis4

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Collaboration in dementia-friendly initiatives (DFIs) is crucial for community inclusion. Feeling useful and collectively powerful are key mechanisms driving successful DFIs, especially when involving people with dementia and their carers.

Keywords:
collaborationdementia-friendlyinclusioninequitypatient and public involvementrealist evaluationsocial participation

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Area of Science:

  • Social Sciences
  • Public Health
  • Community Development

Background:

  • Dementia-friendly communities (DFCs) are vital for including people with dementia and their carers.
  • Dementia-friendly initiatives (DFIs) are foundational to DFCs.
  • Effective collaboration among stakeholders is essential for developing and sustaining DFIs.

Purpose of the Study:

  • To test and refine a theory on collaboration for DFIs.
  • To specifically examine the involvement of people with dementia and their carers in DFI collaboration.
  • To deepen understanding of contextual aspects, mechanisms, and outcomes using a realist approach.

Main Methods:

  • A participatory case study design was employed.
  • Qualitative data were collected through focus groups, observations, meeting minutes, and exit interviews.
  • The study was conducted in four Dutch municipalities aiming to become DFCs.

Main Results:

  • The refined theory highlights contextual factors like diversity, shared insights, and clarity.
  • Key mechanisms identified include recognition, informal leadership, interdependency, belonging, significance, and commitment, fostering feelings of usefulness and collective power.
  • Collaboration outcomes included increased activation, idea generation, and enjoyment, influenced by stakeholder routines and perspectives.

Conclusions:

  • Collaboration in DFIs is significantly driven by feelings of usefulness and collective power.
  • Further research is needed to explore how to best engage people with dementia and their carers at the core of collaborative efforts for DFIs.