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Related Concept Videos

Ethics in Research01:56

Ethics in Research

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Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
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Sometimes we want to see how people change over time, as in studies of human development and lifespan. When we test the same group of individuals repeatedly over an extended period of time, we are conducting longitudinal research. Longitudinal research is a research design in which data-gathering is administered repeatedly over an extended period of time. For example, we may survey a group of individuals about their dietary habits at age 20, retest them a decade later at age 30, and then again...
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If you want to understand how behavior occurs, one of the best ways to gain information is to simply observe the behavior in its natural context. However, people might change their behavior in unexpected ways if they know they are being observed. How do researchers obtain accurate information when people tend to hide their natural behavior? As an example, imagine that your professor asks everyone in your class to raise their hand if they always wash their hands after using the restroom. Chances...
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Longitudinal studies are also widely used in other medical and social science fields. For instance, in cardiovascular research, they can monitor patients' health over decades to identify risk factors for heart disease, such as high cholesterol or smoking, and evaluate the long-term effectiveness of preventive measures. Similarly, in mental health studies, researchers might follow individuals from adolescence into adulthood to understand the development and progression of conditions like...
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The most basic experimental design involves two groups: the experimental group and the control group. The two groups are designed to be the same except for one difference— experimental manipulation. The experimental group gets the experimental manipulation—that is, the treatment or variable being tested—and the control group does not. Since experimental manipulation is the only difference between the experimental and control groups, we can be sure that any differences between...
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Related Experiment Video

Updated: Aug 6, 2025

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
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Developing a Family Resource: Considerations for Family Member Research Participation.

Michele Polfuss1,2, Kim Mooney-Doyle3, Mary Keller4

  • 1University of Wisconsin - Milwaukee, Milwaukee, WI, USA.

Journal of Family Nursing
|March 20, 2023
PubMed
Summary
This summary is machine-generated.

A new family-focused resource helps individuals and families discuss health care research participation. This evidence-based tool promotes informed consent and enhances the research experience for everyone involved.

Keywords:
familyinformed consentparticipationresearch

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Area of Science:

  • Health Services Research
  • Patient and Family Engagement
  • Bioethics

Background:

  • Individual participation in health care research significantly impacts the entire family unit.
  • Existing resources lack a family-centered perspective for educating potential research participants.
  • Researchers have a duty to protect participants and mitigate research-related burdens on families.

Purpose of the Study:

  • To develop and validate an evidence-based, family-focused resource to aid informed consent in health care research.
  • To promote a family-centered approach in the design, recruitment, and enrollment phases of health care research.

Main Methods:

  • Creation of a family-focused, evidence-based educational resource.
  • Revision of the resource based on expert input from family nurse scientists.
  • Incorporation of feedback from a hospital-based family advisory group.

Main Results:

  • A comprehensive resource was developed to facilitate family discussions about research participation.
  • The resource includes targeted questions to guide families through the informed consent process.
  • Expert and lay stakeholder input refined the resource for practical application.

Conclusions:

  • Implementing a family lens in health care research design and participant enrollment is crucial.
  • This family-focused resource can enhance informed decision-making for research participants.
  • Adopting a family perspective may improve participant and family experiences and study outcomes.