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Affirmative Palliative Care for Transgender and Gender Nonconforming Individuals
Megan Pfitzinger Lippe1, Joshua C Eyer, Kailey E Roberts
1Megan Pfitzinger Lippe is an associate professor at the University of Texas Health Science Center at San Antonio. Joshua C. Eyer is director of the Southern Regional Drug Data Research Center in the Institute of Data and Analytics, Culverhouse College of Business, University of Alabama in Tuscaloosa. Kailey E. Roberts is an assistant professor in the Clinical Psychology PsyD Program at Yeshiva University in the Bronx, NY, where Emma R. Ritter is a doctoral student. Pierce K. DiMauro is a DNP candidate at the Columbia University School of Nursing in New York City. Robert E. McKinney Jr. is an associate professor of behavioral medicine in the College of Community Health Sciences at the University of Alabama in Tuscaloosa. Cassandra L. Williamson is executive director of the Transgender American Veterans Association and a former research assistant at the University of Alabama in Tuscaloosa. William E. Rosa is a postdoctoral research fellow at the Memorial Sloan Kettering Cancer Center in New York City. Contact author: Megan Pfitzinger Lippe, lippe@uthscsa.edu . The authors have disclosed no potential conflicts of interest, financial or otherwise.
Abstract:
Nurses have a professional and ethical responsibility to provide inclusive, affirmative palliative care to transgender and gender nonconforming (TGNC) individuals experiencing life-limiting illness or injury. In accordance with standards for professional nursing and health organizations, nurses must continue to take tangible steps to achieve a level of care that is affirming, holistic, nonprejudicial, and collaborative. Providing quality care for TGNC individuals requires informed, competent integration of palliative nursing care, gender-affirmative care, and trans-person-centered health care within nursing practice. An interdisciplinary national team of experts collaborated to identify ways nurses could better uphold their professional responsibilities to TGNC individuals with serious illness. The purposes of this article are to: 1) describe elements of TGNC-inclusive palliative nursing care; and 2) present eight concrete recommendations to achieve affirmative clinical practice for TGNC patients living with life-limiting illness and their family of origin and/or family of choice. These recommendations address professional development, communication, medication reconciliation, mental health, dignity and meaning, social support and caregivers, spiritual beliefs and religion, and bereavement care.
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