Related Experiment Video
Updated: Aug 5, 2025
07:08
Fractionation for Resolution of Soluble and Insoluble Huntingtin Species
Published on: February 27, 2018
9.7K
Advance Care Planning in Huntington's Disease
Mena Farag1,2, Desiree M Salanio1,2, Cara Hearst1,2
1Huntington's Disease Centre, UCL Queen Square Institute of Neurology, University College London, London, UK.
Journal of Huntington'S Disease
|March 27, 2023
Summary
Advance care planning (ACP) empowers Huntington's disease patients by formalizing wishes for future medical care. This patient-centered approach ensures autonomy and guides care decisions, even when capacity declines.
Area of Science:
- Neurology
- Bioethics
- Healthcare Management
Background:
- Advance care planning (ACP) facilitates patient autonomy by documenting future medical preferences.
- Huntington's disease (HD) presents unique challenges for decision-making capacity, necessitating early planning.
Purpose of the Study:
- To highlight the importance of a dedicated Advance Care Planning clinic within a Huntington's disease service.
- To emphasize a patient-centered approach for tailoring care plans to individual goals and values.
Main Methods:
- Integration of a dedicated ACP clinic within an existing HD service.
- Framework development for patient-centered care planning and regular follow-up.
Main Results:
- ACP empowers patients, ensuring care aligns with their expressed wishes.
- Provides reassurance to clinicians and surrogate decision-makers regarding patient preferences.
- Facilitates consistent decision-making through regular follow-up.
Conclusions:
- A dedicated ACP clinic is crucial for Huntington's disease patients.
- Patient-centered planning ensures care respects individual goals, preferences, and values.
- Early and consistent ACP discussions are vital for managing Huntington's disease.
Related Concept Videos
01:21Planning Nursing Care I
4.6K
The planning phase of the nursing process helps nurses set priorities, outline patient-centered goals and expected outcomes, and tailor nursing interventions to align with the aligned care plan. Through the planning phase, the nurse applies critical thinking skills to align and develop interventions according to the patient's needs. It provides continuity of care allowing patients to receive the maximum benefit from treatment. It serves as a pilot plan for allocating individual staff to a...
4.6K
01:25Continuing Care
1.5K
Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
1.5K
01:22Alzheimer's Disease: Treatment
233
Alzheimer's Disease (AD), a neurodegenerative disorder, is pathologically identified by amyloid plaques and neurofibrillary tangles composed of tau protein. AD pharmacotherapy aims to manage cognitive symptoms, delay disease progression, and treat behavioral symptoms. The treatment is primarily symptomatic and palliative, with no definitive disease-modifying therapy available. Cholinesterase inhibitors, including donepezil (Aricept), rivastigmine (Exelon), and galantamine (Razadyne), are...
233
01:24Parkinson's Disease: Treatment
321
Neurodegenerative disorders, such as Parkinson's Disease (PD), involve the gradual and irreversible destruction of neurons in particular brain areas. These disorders exhibit standard features like proteinopathies, selective vulnerability of some neurons, and an interaction of intrinsic properties, genetics, and environmental influences in neural injury.
Parkinson's Disease is primarily a result of the loss of dopaminergic neurons in the substantia nigra pars compacta. The cornerstone of...
Parkinson's Disease is primarily a result of the loss of dopaminergic neurons in the substantia nigra pars compacta. The cornerstone of...
321
01:29Documentation in Long-Term and Home Healthcare Setting
949
Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
Long-Term Care Facilities
949
01:15Parkinson's Disease: Overview
633
Neurodegenerative disorders are progressive diseases that cause irreversible damage and loss to neurons in specific brain areas. Examples of these disorders include Parkinson's disease, Alzheimer's disease, Multiple Sclerosis (MS), and Amyotrophic Lateral Sclerosis (ALS). These disorders share characteristics such as proteinopathies, selective neuronal vulnerability, and a complex interplay between genetic and environmental factors. The primary therapeutic goal for these conditions is...
633