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SCI Thrive: Impact of a peer-led online self-management program.

Jeanne M Hoffman1, Chris Garbaccio1, Shannon Tyman1

  • 1University of Washington School of Medicine, Seattle, Washington, USA.

The Journal of Spinal Cord Medicine
|March 31, 2023
PubMed
Summary

A peer-led online program for spinal cord injury (SCI) improved self-efficacy and quality of life. Increased engagement in the SCI Thrive program correlated with better outcomes, suggesting potential for enhanced self-management.

Keywords:
Self-efficacySelf-managementSpinal cord injury

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Area of Science:

  • Rehabilitation Medicine
  • Health Services Research
  • Patient Self-Management

Background:

  • Spinal cord injury (SCI) presents lifelong challenges impacting quality of life and self-management.
  • Effective, accessible interventions are crucial for individuals with SCI to navigate health and participation.
  • Online, peer-led programs offer a scalable approach to support SCI self-management.

Purpose of the Study:

  • To evaluate the effectiveness of SCI Thrive, a peer-led online self-management program, for adults with spinal cord injury.
  • To assess the program's impact on perceived quality of life, self-efficacy for health, and participation.
  • To identify factors influencing program outcomes, such as participant engagement.

Main Methods:

  • A randomized waitlist control trial involving 184 adults with SCI.
  • The intervention group participated in SCI Thrive, featuring self-paced online content and live video discussions.
  • Outcomes were measured using validated tools assessing quality of life, self-efficacy, and participation.

Main Results:

  • Participants completing SCI Thrive demonstrated significant increases in self-efficacy from baseline to 6 weeks and sustained this at 3 months.
  • Higher engagement with SCI Thrive was associated with improved quality of life, self-efficacy, and mobility.
  • The treatment group showed a significant improvement in the CHART occupational subscale compared to the waitlist group.

Conclusions:

  • SCI Thrive is an accessible program with potential to enhance self-efficacy in individuals with SCI.
  • Strategies to boost participant engagement are recommended to maximize the program's benefits.
  • Further research is warranted to confirm efficacy and explore group-focused components, like physical activity interventions.