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Usability of a Community-Based Dementia Resource Website: Mixed Methods Study.

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The Dementia613.ca website effectively connects people with dementia and their care partners to community resources, meeting a significant need. While the concept is strong, improvements in navigation and search functionality are recommended for enhanced user experience.

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Area of Science:

  • Gerontology
  • Health Informatics
  • Community Health

Background:

  • Many individuals with dementia aim to age in place, requiring support from informal care partners.
  • Informal care partners in Canada are often overburdened and struggle to locate community-based dementia-inclusive resources.
  • Dementia613.ca is an eHealth platform designed to simplify resource discovery for individuals with dementia and their care partners.

Purpose of the Study:

  • To evaluate the effectiveness of Dementia613.ca in connecting care partners and persons with dementia to community resources.
  • To assess whether the website meets its goal of facilitating access to dementia-inclusive services.

Main Methods:

  • A mixed-methods approach was employed, including web analytics (Google Analytics) over nine months.
  • Two web-based questionnaires were administered to care partners, persons with dementia, and service providers over six months.
  • Moderated, remote task-analysis sessions were conducted with persons experiencing cognitive decline and their care partners.

Main Results:

  • The Dementia613.ca concept is well-received, addressing an unmet need for a centralized resource hub.
  • Over 60% of users (care partners and persons with dementia) and 70% of organizations found the website improved resource accessibility.
  • Participants identified opportunities for enhancing website navigation and search functionalities.

Conclusions:

  • The Dementia613.ca model demonstrates a successful framework for connecting individuals with dementia and their care partners to local resources.
  • The platform's generalizable framework can guide the development of similar dementia resource websites in other regions.
  • Replication of this model can improve access to essential community support for persons with dementia and their caregivers.