Search research articles

ABOUT JoVE

Overview Leadership Blog JoVE Help Center

AUTHORS

Publishing Process Editorial Board Scope & Policies Peer Review FAQ Submit

LIBRARIANS

Testimonials Subscriptions Access Resources Library Advisory Board FAQ

RESEARCH

JoVE Journal Methods Collections JoVE Encyclopedia of Experiments Archive

EDUCATION

JoVE Core JoVE Business JoVE Science Education JoVE Lab Manual Faculty Resource Center Faculty Site

Terms & Conditions of Use

Related Concept Videos

Guidelines for Writing Outcome

Guidelines for Writing Outcome

When developing expected outcomes for a patient care plan, the nurse should adhere to the following recommendations:
Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care...

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by

Same author

Regulating Together: Caregivers' experiences in a shared journey through an emotion dysregulation intervention for autistic youth.

Research in developmental disabilities·2026

Same author

Gaboxadol increases resting theta and alpha power without affecting evoked responses in fragile X syndrome in a home-based setting.

Journal of neurodevelopmental disorders·2026

Same author

Regulating Together: perspectives on improving emotion regulation in autistic youth.

Frontiers in psychiatry·2026

Same author

SPG601-associated modulation of resting-state EEG and improvement in executive function in a fragile X syndrome randomized controlled crossover study.

Scientific reports·2026

Same author

Acute and chronic dosing of the GABA A alpha 2,3 selective agonist BAER-101 do not alter behavior but may impact auditory-evoked EEG responses in adults with fragile X syndrome.

Scientific reports·2026

Same author

Alpha oscillations are dysrhythmic in Fragile X syndrome.

bioRxiv : the preprint server for biology·2026

Search research articles

Related Experiment Video

Updated: Aug 2, 2025

TMS: Using the Theta-Burst Protocol to Explore Mechanism of Plasticity in Individuals with Fragile X Syndrome and Autism

TMS: Using the Theta-Burst Protocol to Explore Mechanism of Plasticity in Individuals with Fragile X Syndrome and Autism

Published on: December 28, 2010

Developing improved outcome measures in FXS: Key stakeholder feedback.

Sungeun Kang¹, Angelina Jones¹, Rebecca C Shaffer²

¹Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.

Research in Developmental Disabilities

|April 20, 2023

Summary

This summary is machine-generated.

Caregiver and self-advocate feedback is crucial for developing better behavioral outcome measures in Fragile X Syndrome (FXS). Understanding their experiences with current measures can reduce distress and improve measure design.

Keywords:

Caregiver perspectives Fragile X Syndrome Individuals with developmental disabilities Outcome Measure Stakeholder Voice of the Patient

More Related Videos

A Robust Polymerase Chain Reaction-based Assay for Quantifying Cytosine-guanine-guanine Trinucleotide Repeats in Fragile X Mental Retardation-1 Gene

A Robust Polymerase Chain Reaction-based Assay for Quantifying Cytosine-guanine-guanine Trinucleotide Repeats in Fragile X Mental Retardation-1 Gene

Published on: September 16, 2019

Measuring the Functional Abilities of Children Aged 3-6 Years Old with Observational Methods and Computer Tools

Measuring the Functional Abilities of Children Aged 3-6 Years Old with Observational Methods and Computer Tools

Published on: June 20, 2020

Related Experiment Videos

Last Updated: Aug 2, 2025

TMS: Using the Theta-Burst Protocol to Explore Mechanism of Plasticity in Individuals with Fragile X Syndrome and Autism

TMS: Using the Theta-Burst Protocol to Explore Mechanism of Plasticity in Individuals with Fragile X Syndrome and Autism

Published on: December 28, 2010

A Robust Polymerase Chain Reaction-based Assay for Quantifying Cytosine-guanine-guanine Trinucleotide Repeats in Fragile X Mental Retardation-1 Gene

A Robust Polymerase Chain Reaction-based Assay for Quantifying Cytosine-guanine-guanine Trinucleotide Repeats in Fragile X Mental Retardation-1 Gene

Published on: September 16, 2019

Measuring the Functional Abilities of Children Aged 3-6 Years Old with Observational Methods and Computer Tools

Measuring the Functional Abilities of Children Aged 3-6 Years Old with Observational Methods and Computer Tools

Published on: June 20, 2020

Area of Science:

Neuroscience
Psychology
Genetics

Background:

Fragile X Syndrome (FXS) requires improved outcome measures.
Caregiver and self-report measures are vital but need stakeholder input.
Current measures may cause distress to individuals with FXS and their caregivers.

Purpose of the Study:

To understand the experiences of completing behavioral outcome measures in FXS.
To gather firsthand perspectives from caregivers and individuals with FXS.

Main Methods:

Focus group methodology with 22 caregivers and 3 self-advocates.
Semi-structured interviews conducted via secure videoconferencing.
Thematic analysis to identify key themes and subthemes.

Main Results:

Four major themes emerged: measure content, structure, accommodations, and family impact.
Specific aspects of measure content, structure, and implementation caused distress.
Feedback highlighted negative emotional impacts on caregivers and individuals with FXS.

Conclusions:

Stakeholder perspectives are critical for developing and utilizing FXS measures.
Addressing content, structure, and implementation can mitigate distress.
Future measures should prioritize the experiences of those directly affected by FXS.