Adolescent Young Adult Acute Lymphoblastic Leukemia Survivors Develop Innovative Solutions for Unmet Needs
Tara Brown1, Sunita Ramocan2, Rebecca Block2
1Servier Pharmaceuticals, Boston, Massachusetts, USA.
Journal of Adolescent and Young Adult Oncology
|April 24, 2023
Summary
Adolescent and young adult (AYA) cancer survivors need more support. A task force of survivors identified unmet needs and prioritized peer-led solutions for AYA cancer care.
Area of Science:
- Oncology
- Patient Support
- Survivorship Care
Background:
- Adolescent and young adult (AYA) cancer survivors face significant unmet needs.
- Existing support systems often do not fully address the unique challenges faced by AYA survivors.
- Insights from a dedicated task force highlight the demand for peer-driven support.
Purpose of the Study:
- To analyze unmet needs in adolescent and young adult (AYA) cancer survivors.
- To identify and explore potential solutions for prioritized unmet needs.
- To involve survivors, caregivers, and advocates in developing actionable support concepts.
Main Methods:
- Secondary data analysis of information gathered from a task force of AYA cancer survivors, caregivers, and advocates.
- Identification of unmet needs across five key domains.
- Exploration of solutions for four prioritized needs.
Main Results:
- Five distinct domains of unmet needs were identified among AYA cancer survivors.
- Four prioritized needs were explored for potential solutions.
- Four actionable solution concepts were selected by the task force for future development.
- Key insights were gained regarding survivor involvement in solution creation.
Conclusions:
- Survivor-led initiatives are crucial for addressing unmet needs in adolescent and young adult (AYA) cancer care.
- Developing actionable, survivor-informed solutions is essential for improving AYA cancer survivorship.
- Collaboration with survivors, caregivers, and advocates provides valuable perspectives for enhancing support services.
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