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Patient and Public Involvement in Health Economics Modelling Raises the Need for Normative Guidance.
Stephanie Harvard1, Eric Winsberg2,3
1Faculty of Pharmaceutical Sciences, University of British Columbia (UBC), Vancouver, BC, V6T 1Z3, 2405 Wesbrook Mall, Canada. stephanie.harvard@ubc.ca.
Pharmacoeconomics
|April 27, 2023
Summary
Patient and public involvement in health economics modeling is crucial for managing value judgments. This article discusses the need for normative guidance to address practical and philosophical issues in this emerging area.
Area of Science:
- Health Economics
- Health Technology Assessment
- Patient and Public Involvement
Background:
- Patient and public involvement is growing in health economics research and health technology assessment.
- Involvement in health economics modelling is a newer, developing area.
- Managing social and ethical value judgments in model development and interpretation is a key driver for this involvement.
Purpose of the Study:
- To reflect on the need for normative guidance for patient and public involvement in health economics modelling.
- To identify key questions that such guidance should address.
- To discuss practical and philosophical issues arising from patient and public involvement in health economics modelling.
Main Methods:
- The authors attended an engagement event.
- The event involved patients, the public, researchers, and decision-makers.
- The article reflects on discussions from the event.
Main Results:
- A priority identified was the need to develop normative guidance for patient and public involvement in health economics modelling.
- The authors reflect on why this guidance is necessary.
- The authors consider what questions this guidance should answer.
Conclusions:
- Normative guidance is needed to support patient and public involvement in health economics modelling.
- Further discussion and debate are required to establish this guidance.
- Addressing practical and philosophical issues is essential for effective involvement.
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