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Challenges Experienced by Nurses in Providing Pediatric Palliative Care: An Interpretive Phenomenological Analysis

Erna Judith Roach1, Omar Al Omari2, Sheeba Elizabeth John1

  • 1Department of Maternal and Child Health, College of Nursing, Sultan Qaboos University, Muscat, Oman.

Journal of Palliative Care
|May 5, 2023
PubMed

Insights

Nurses face significant personal, educational, and organizational challenges when providing palliative care to children with leukemia. Addressing these issues is vital for improving care quality and nurse satisfaction in pediatric oncology.

Area of Science:

  • Pediatric Oncology
  • Palliative Care Nursing
  • Healthcare Management

Background:

  • Pediatric leukemia is the most common childhood cancer, necessitating specialized palliative care.
  • Palliative care for children with leukemia presents unique challenges for healthcare teams.
  • Nurses play a critical role in delivering palliative care to pediatric cancer patients.

Purpose of the Study:

  • To explore the challenges faced by nurses in providing palliative care to children with leukemia.
  • To identify personal, educational, and organizational barriers impacting pediatric palliative care delivery.
  • To inform strategies for enhancing support systems for nurses in this field.

Main Methods:

  • Semi-structured, face-to-face interviews were conducted with 11 nurses.
  • Participants were from hematology-oncology units in a tertiary care hospital in Oman.
  • Interpretive phenomenological analysis was used to analyze interview transcripts.

Main Results:

  • Personal challenges included emotional burden, task management difficulties, stress during parental communication, and feelings of powerlessness.
  • Educational challenges highlighted nurses' perceived lack of preparedness for physical and psychosocial care needs.
  • Organizational challenges involved the need for prayer/rest rooms, private family spaces, and increased access to psychologists.

Conclusions:

  • Addressing nurses' emotional well-being and task management is crucial.
  • Enhancing nurses' education on pediatric palliative care is essential.
  • Improving workplace support, clinical guidance, and organizational resources can boost nurse satisfaction and care quality.

Keywords:
childleukemianursespalliative carepediatrics

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