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Developing a Comprehensive Adolescent and Young Adult Cancer Program: Lessons Learned from 7 Years of Growth and
Emily R Haines1, Lauren Lux2, Jacob Stein3
1Department of Implementation Science, Wake Forest School of Medicine, Winston-Salem, North Carolina, USA.
Adolescents and young adults (AYAs) with cancer have unmet needs. This paper details the development of a specialized AYA cancer program at UNC Lineberger, offering strategies for other centers to build similar services.
Area of Science:
- Oncology
- Adolescent and Young Adult (AYA) Health
- Cancer Care Delivery
Background:
- Nearly 100,000 adolescents and young adults (AYAs) are diagnosed with cancer annually in the US.
- This population often experiences unmet physical, psychosocial, and practical needs during and post-treatment.
- Specialized AYA cancer programs are emerging but face implementation barriers.
Purpose of the Study:
- To describe the development of an AYA cancer program at UNC Lineberger Comprehensive Cancer Center.
- To offer pragmatic strategies for establishing, implementing, and sustaining AYA cancer programs.
- To provide guidance for cancer centers aiming to improve care for AYAs.
Main Methods:
- Retrospective summary of the evolution of the UNC AYA Cancer Program since 2015.
- Identification and documentation of key strategies and lessons learned during program development.
- Qualitative analysis of program implementation and sustainability factors.
Main Results:
- The UNC AYA Cancer Program has evolved significantly since its inception in 2015.
- Key strategies for program development, implementation, and sustainability have been identified.
- The program's development offers valuable insights for other institutions.
Conclusions:
- Developing specialized AYA cancer programs requires addressing multilevel barriers.
- Pragmatic strategies derived from the UNC experience can guide other cancer centers.
- Sustained efforts are crucial for improving cancer care delivery for AYAs.
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