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Adolescent and Young Adult Understanding of Their Childhood Cancer Predisposition Diagnosis: A Qualitative Study
Katianne M Howard Sharp1, Alise Blake2, Jessica Flynn1
1Department of Psychology & Biobehavioral Sciences, St. Jude Children's Research Hospital, Memphis, TN.
Abstract:
We characterized germline genetic test result understanding in adolescents and young adults (AYAs) (n = 21) with cancer 1-3.9 years post-disclosure using semistructured qualitative interviews. Most AYAs articulated their cancer risk; however, 5 did not remember results and a subset demonstrated misperceptions regarding risk or confusion regarding their medical care. These findings highlight variability in AYA understanding warranting further inquiry.
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