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Treatment burden in multiple long-term conditions: a mixed-methods study protocol.

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  • 1Centre for Academic Primary Care, Bristol Medical School, University of Bristol, Bristol, UK.

BJGP Open
|June 9, 2023
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Summary
This summary is machine-generated.

Younger adults (18-65) with multiple long-term conditions face significant treatment burden. Understanding their experiences is key to improving primary care services and health outcomes.

Keywords:
general practicemultimorbidityprimary health careprimary healthcareyoung adult

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Area of Science:

  • Health Services Research
  • Patient Experience
  • Primary Care

Background:

  • Treatment burden, the work and impact of healthcare on patients, is increasingly recognized in younger adults (18-65) with multiple long-term conditions (MLTC-M).
  • Unlike older populations, younger adults with MLTC-M may experience treatment burden uniquely, necessitating tailored research.
  • Identifying at-risk individuals and understanding their experiences are crucial for optimizing primary care.

Purpose of the Study:

  • To investigate the treatment burden in adults aged 18-65 years living with MLTC-M.
  • To explore how primary care services influence this treatment burden.
  • To inform the development of interventions aimed at reducing treatment burden.

Main Methods:

  • A mixed-methods study conducted across 33 primary care practices in two UK regions.
  • Qualitative interviews (approx. 40 participants) to explore lived experiences of treatment burden and primary care impact.
  • A cross-sectional patient survey (approx. 1000 participants) with linked medical records to identify factors associated with treatment burden and validate a new questionnaire (STBQ).

Main Results:

  • The study will provide a detailed understanding of treatment burden in younger adults with MLTC-M.
  • It will elucidate the role of primary care in mediating treatment burden.
  • The validity of the Short Treatment Burden Questionnaire (STBQ) will be assessed for clinical use.

Conclusions:

  • This research will generate crucial insights into the treatment burden experienced by working-age adults with MLTC-M.
  • Findings will guide the development of targeted interventions to alleviate treatment burden.
  • The study aims to positively influence MLTC-M management and improve patient health outcomes.