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Gaps in the System: Supporting People Living with Dementia.
Madeline King1, Allie Peckham1,2,3, Husayn Marani1,4
1North American Observatory on Health Systems and Policies, Toronto, Ontario, Canada.
Journal of Aging & Social Policy
|July 3, 2023
Summary
Dementia care programs face challenges meeting diverse needs due to system gaps. Improving infrastructure and understanding dementia is crucial for supporting individuals living with dementia and their caregivers.
Area of Science:
- Gerontology
- Public Health
- Health Services Research
Background:
- Individuals with dementia and their caregivers experience significant challenges accessing adequate support services.
- Existing dementia care programs often fall short of addressing the complex and varied needs of this population.
Purpose of the Study:
- To explore the perceptions of program administrators, people living with dementia, unpaid caregivers, and decision-makers regarding dementia care programs.
- To assess whether current dementia care programs adequately meet the needs of individuals living with dementia and their caregivers.
Main Methods:
- Conducted 40 semi-structured interviews between 2018 and 2020 across five North American jurisdictions.
- Gathered insights from diverse stakeholders including service providers, recipients, and policymakers.
Main Results:
- Identified three critical gaps: disconnected system infrastructure, insufficient comprehensive services, and inconsistent understanding of dementia.
- Despite program implementation, significant systemic limitations hinder the adequate support of individuals with dementia and their caregivers.
Conclusions:
- Current dementia care systems require substantial improvements to effectively address the needs of people living with dementia.
- Addressing infrastructure, service comprehensiveness, and shared understanding of dementia is essential for enhancing care.
- Systemic changes are necessary to ensure dementia care programs adequately support individuals and their caregivers.
Keywords:
Alzheimer’s diseasedementiahealth systemsintegrated care/care coordinationperson-centered approach/careMore Related Videos
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