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Future pHealth Ecosystem-Holistic View on Privacy and Trust.

Pekka Ruotsalainen¹, Bernd Blobel²

¹Faculty of Information Technology and Communication Sciences (ITC), Tampere University, 33100 Tampere, Finland.

Journal of Personalized Medicine

|July 29, 2023

Summary

This summary is machine-generated.

Personalized healthcare (pHealth) systems need better privacy and trust solutions. This study proposes a five-level model and blockchain solution to ensure ethical, private, and trustworthy pHealth ecosystems.

Keywords:

fiducial duty holistic view privacy privacy law smart contract trust

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Area of Science:

Digital Health
Information Security
Healthcare Systems Engineering

Background:

Personalized healthcare (pHealth) utilizes advanced technologies to collect personal health information (PHI).
Current pHealth ecosystems lack adequate privacy solutions, leading to an illusion of trust.
Future pHealth systems will be more complex, distributed, and autonomous, exacerbating privacy and trust challenges.

Purpose of the Study:

To address the system-level challenges of privacy and trust in pHealth ecosystems.
To develop a conceptual model and framework for ethically acceptable, privacy-enabled, and trustworthy pHealth.
To propose a holistic, system-focused solution for future pHealth environments.

Main Methods:

Development of a conceptual five-level privacy and trust model.
Formulation of a mathematical model to quantify the impact of privacy and trust factors.
Analysis of privacy and trust challenges and solutions across each level of the model.
Proposal of a hybrid approach combining "privacy as personal property" and "trust as legally binding fiducial duty".

Main Results:

A five-level privacy and trust model for pHealth ecosystems was conceptualized.
A formula was derived to quantify the influence of various factors on privacy and trust levels.
Challenges and potential solutions for privacy and trust were identified at each model level.
A novel solution integrating personal property rights for privacy and legal duties for trust was proposed.

Conclusions:

Privacy and trust in pHealth are critical system-level issues requiring holistic solutions.
The proposed five-level model and blockchain-based smart contract system offer a pathway to ethically acceptable, privacy-enabled, and trustworthy pHealth.
Future pHealth systems can be designed to be secure and trustworthy by implementing robust privacy and trust frameworks.