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Published on: November 18, 2018
Health Care Disparities in Pulmonary Arterial Hypertension
Roberto J Bernardo1, Vinicio A de Jesus Perez2
1Division of Pulmonary, Critical Care and Sleep Medicine, University of Oklahoma Health Sciences Center, 800 Stanton L. Young Boulevard, Suite 8400, Oklahoma City, OK 73104, USA.
Minorities are underrepresented in pulmonary arterial hypertension (PAH) clinical trials, limiting data generalizability. Addressing race, ethnicity, and socioeconomic factors is crucial for equitable PAH healthcare access and outcomes.
Area of Science:
- Cardiology and Pulmonary Medicine
- Health Disparities Research
- Health Equity
Background:
- Current pulmonary arterial hypertension (PAH) management relies on clinical trial and registry data.
- Significant underrepresentation of minority populations, including Black, Indigenous, and People of Color, exists in these data sources.
- This lack of representation raises concerns about the generalizability of current PAH knowledge and treatment guidelines to diverse patient groups.
Purpose of the Study:
- To review existing knowledge on healthcare disparities in pulmonary arterial hypertension (PAH).
- To highlight the significance of race/ethnicity and socioeconomic factors in PAH patient populations.
- To propose actionable future steps for achieving health justice and equality in pulmonary hypertension care globally.
Main Methods:
- Literature review of current knowledge on health care disparities in PAH.
- Analysis of the impact of race, ethnicity, and socioeconomic status on PAH patient data.
- Synthesis of findings to propose future strategies for equitable healthcare access.
Main Results:
- Evidence indicates underrepresentation of minority groups in PAH clinical trials and registries.
- Race, ethnicity, and socioeconomic factors significantly influence PAH prevalence, presentation, and potentially treatment response.
- Current data is not fully generalizable, potentially leading to suboptimal care for underrepresented populations.
Conclusions:
- Addressing underrepresentation and disparities is essential for equitable PAH management.
- Future research and policy initiatives must prioritize inclusivity and socioeconomic considerations.
- Achieving health justice in pulmonary hypertension requires a global commitment to equal access and care.
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