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"What Services?": Stakeholders' Perceived Unmet Support Needs for Parents With Neurological Disorders
Summary
Parents with neurological disorders need societal recognition and policy adjustments to better support their parenting journey. Addressing these needs is crucial for family well-being and creating inclusive communities.
Area of Science:
- Disability Studies
- Child and Family Health
- Public Health Policy
Background:
- Limited understanding exists regarding the specific needs of parents with neurological disorders caring for young children.
- This gap highlights a critical area for research and intervention to support vulnerable families.
Purpose of the Study:
- To explore the unmet needs of parents with neurological disorders raising young children.
- To identify current support systems and propose solutions for optimizing support in a Canadian context.
Main Methods:
- Qualitative study employing focus groups and individual interviews with diverse stakeholders including parents, spouses, clinicians, and community partners.
- Data analysis involved inductive iterative thematic analysis of 35 participants' input.
Main Results:
- Key findings emphasize the need for societal recognition of parenting with disabilities.
- Participants called for policy adjustments, expanded public programs, and the creation of barrier-free communities to support child development and family well-being.
Conclusions:
- Customized solutions are essential to bridge identified service gaps for parents with neurological disorders.
- Addressing these needs is paramount for enhancing the well-being of families with disabilities.
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