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Area of Science:

  • Health Services Research
  • Patient-Reported Outcomes
  • Quality of Life Measurement

Background:

  • Outcomes measurement is critical in healthcare, influencing 'pay for performance' initiatives.
  • Patient-generated indexes (PGI) assess quality of life based on individual patient goals.
  • The PGI's utility in Appalachian populations with back pain remained unexplored.

Purpose of the Study:

  • To evaluate the feasibility and acceptability of the PGI in an Appalachian patient cohort with back pain.
  • To assess the PGI's suitability for outcomes monitoring in a neurosurgery clinic setting.
  • To contribute to understanding patient-reported outcomes in diverse populations.

Main Methods:

  • The PGI was self-administered to 80 new back pain patients in an Appalachian neurosurgery clinic.
  • Patient acceptability, compliance, and written comments were analyzed.
  • Data were collected to assess the PGI's performance in this specific demographic.

Main Results:

  • The initial form of the PGI did not meet acceptable levels for use in the studied Appalachian subspecialist clinic.
  • Patient feedback indicated areas for improvement in the PGI's application.
  • Compliance and self-reported data collection were assessed.

Conclusions:

  • The PGI, in its current iteration, is not suitable for this specific Appalachian patient group.
  • Further modifications are needed to adapt the PGI for use in diverse patient populations.
  • Patient-generated outcome measures are vital for tracking quality of life improvements over time.