Related Experiment Video
Updated: Jul 17, 2025

Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
Published on: April 12, 2021
An agenda-setting paper on data sharing platforms: euCanSHare workshop
Thijs Devriendt1, Clemens Ammann2, Folkert W Asselbergs3,4,5,6
1Centre for Biomedical Ethics and Law, Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.
Abstract:
Various data sharing platforms are being developed to enhance the sharing of cohort data by addressing the fragmented state of data storage and access systems. However, policy challenges in several domains remain unresolved. The euCanSHare workshop was organized to identify and discuss these challenges and to set the future research agenda. Concerns over the multiplicity and long-term sustainability of platforms, lack of resources, access of commercial parties to medical data, credit and recognition mechanisms in academia and the organization of data access committees are outlined. Within these areas, solutions need to be devised to ensure an optimal functioning of platforms.
Related Concept Videos
Legal Guidelines for Documentation
Ethics in Research
Ethical Issues
Ethical Concerns in Healthcare:
Drug Control Governance: Regulatory Bodies and Their Impact
Ethical Standards II
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
Data Reporting and Recording

