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Empowering Lung Cancer Survivors in Post-Treatment Survivorship Care Using Participatory Action Research
Kelly Filchner1, Rick Zoucha2, Joan Such Lockhart2
1Fox Chase Cancer Center.
Oncology Nursing Forum
|September 7, 2023
Summary
Lung cancer survivors need resources and advocacy for post-treatment care. Participatory action research empowered survivors and caregivers, leading to the creation of support flyers.
Area of Science:
- Oncology Nursing
- Patient Advocacy
- Qualitative Research
Background:
- Post-treatment care for lung cancer survivors (LCSs) is complex.
- Caregiver involvement is crucial for LCSs' well-being.
- Empowering LCSs and caregivers is essential for effective survivorship care.
Purpose of the Study:
- To explore LCSs' and caregivers' experiences with post-treatment care.
- To empower LCSs and caregivers through action-based findings.
- To identify needs and develop supportive resources for LCSs.
Main Methods:
- Participatory action research (PAR) in a four-phase design.
- Focused ethnography and core group participant involvement.
- Action implementation and evaluation of outcomes.
Main Results:
- Identified themes: need for resources/education, mentoring/advocacy, and living vs. surviving.
- Developed two flyers for post-treatment support and advocacy.
- Survivors and caregivers agreed on themes and action, with noted dissent on tobacco management and stigma.
Conclusions:
- Oncology nurses can utilize PAR to empower LCSs in post-treatment care.
- Future PAR should address support groups and stigma alleviation for LCSs and caregivers.
- Findings highlight the importance of survivor-centered approaches in cancer care.
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