Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Data Reporting and Recording01:24

Data Reporting and Recording

4.7K
Reporting and recording are crucial in data documentation. The timely, thorough, and accurate documentation of facts is essential when recording patient data. Failure to record findings during an assessment or interpretation of a problem will result in loss of information and make the patient document unreliable. The reader is left with general impressions if the information is not specific. A recording is documenting data of the individual's health information in a traceable, secure, and...
4.7K
Issues And Trends In Healthcare Delivery System01:29

Issues And Trends In Healthcare Delivery System

5.7K
The issues and trends in healthcare delivery are constantly changing. The COVID-19 pandemic is one recent issue that wreaked havoc on healthcare systems, causing a shortage of healthcare workers, high demand for medicines and supplies, and increased medical expenditure due to a lack of insurance. Other issues include rising healthcare costs and care fragmentation.
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
5.7K

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Autoantibodies to IL-1Ra and PGRN in severe COVID-19 are associated with inflammation-induced hyperphosphorylated antigen isoforms.

Nature communications·2026
Same author

Effects of Non-IID Distributions in Lung Cancer Data on Survival Prediction with Federated Ensemble Learning.

Studies in health technology and informatics·2026
Same author

Perspectives Across Data Holders, Tech Enablers, and Research Data Users in Trusted Research Environments.

Studies in health technology and informatics·2026
Same author

Meet NUM-ENRICH: A Collaborative National Effort to Extend and Harmonize Research Infrastructures Within the German Network University Medicine.

Studies in health technology and informatics·2026
Same author

FAIRification on Trial? A Provenance and Reproducible Metadata Build Pipeline for Clinical Research.

Studies in health technology and informatics·2026
Same author

Data Management in Forensic Medicine: A Proposal for a Layered Architecture Model.

Studies in health technology and informatics·2026

Related Experiment Video

Updated: Jul 16, 2025

A Metadata Extraction Approach for Clinical Case Reports to Enable Advanced Understanding of Biomedical Concepts
07:50

A Metadata Extraction Approach for Clinical Case Reports to Enable Advanced Understanding of Biomedical Concepts

Published on: September 20, 2018

15.9K

Reusing Biomedical Data as Agreed - Towards Structured Metadata for Data Use Agreements.

Caroline Bönisch1, Sabine Hanß1,2, Nicolai Spicher1,2,3

  • 1Department of Medical Informatics, University Medical Center Göttingen, Germany.

Studies in Health Technology and Informatics
|September 12, 2023
PubMed
Summary
This summary is machine-generated.

Managing biomedical data use agreements is complex due to unstructured contracts. This study identifies key metadata to streamline data sharing and compliance for researchers.

Keywords:
contractdata reusedata usage agreementmetadata

More Related Videos

Databases to Efficiently Manage Medium Sized, Low Velocity, Multidimensional Data in Tissue Engineering
09:43

Databases to Efficiently Manage Medium Sized, Low Velocity, Multidimensional Data in Tissue Engineering

Published on: November 22, 2019

6.3K
TBase - an Integrated Electronic Health Record and Research Database for Kidney Transplant Recipients
09:00

TBase - an Integrated Electronic Health Record and Research Database for Kidney Transplant Recipients

Published on: April 13, 2021

4.6K

Related Experiment Videos

Last Updated: Jul 16, 2025

A Metadata Extraction Approach for Clinical Case Reports to Enable Advanced Understanding of Biomedical Concepts
07:50

A Metadata Extraction Approach for Clinical Case Reports to Enable Advanced Understanding of Biomedical Concepts

Published on: September 20, 2018

15.9K
Databases to Efficiently Manage Medium Sized, Low Velocity, Multidimensional Data in Tissue Engineering
09:43

Databases to Efficiently Manage Medium Sized, Low Velocity, Multidimensional Data in Tissue Engineering

Published on: November 22, 2019

6.3K
TBase - an Integrated Electronic Health Record and Research Database for Kidney Transplant Recipients
09:00

TBase - an Integrated Electronic Health Record and Research Database for Kidney Transplant Recipients

Published on: April 13, 2021

4.6K

Area of Science:

  • Biomedical Informatics
  • Data Governance
  • Research Ethics

Background:

  • Increasing availability of reusable biomedical data from cohort studies and clinical routine data.
  • Data re-users struggle to manage transferred data according to heterogeneous data use agreements (DUAs).
  • Current DUAs are unstructured text documents, complicating compliance and daily research practice.

Purpose of the Study:

  • To analyze and review existing data use agreements for digital data transfer.
  • To identify essential metadata for managing data use, storage, sharing, and publication regulations.
  • To propose a structured metadata approach for improved data governance and accessibility.

Main Methods:

  • Inspection and review of seven different data usage agreements.
  • Focus on digital data that is copied and transferred to the requester's environment.
  • Identification of metadata items across key categories: data usage, storage, sharing, and publication.

Main Results:

  • Identified 24 essential metadata items across four main categories: data usage, storage, sharing, and publication of results.
  • Demonstrated significant overlap in topics covered by DUAs but diversity in specific regulations.
  • Highlighted the practical relevance of these regulations for daily research activities and data sharing.

Conclusions:

  • A limited set of structured metadata items can significantly improve data accessibility and compliance.
  • Structured metadata provides data scientists with crucial information about DUAs alongside transferred data.
  • This approach facilitates easier management of data use agreements, even considering trusted research environments.