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What does the general public know about palliative care? A population-based survey
Marjolein Matthys1,2, Kenneth Chambaere3,2, Kim Beernaert3,2
1End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium marjolein.matthys@ugent.be.
BMJ Supportive & Palliative Care
|September 12, 2023
Summary
Public understanding of palliative care is mixed; while some concepts are known, key aspects remain unclear. Educational strategies should target specific knowledge gaps, potentially using community and experience-based approaches.
Area of Science:
- Public Health
- Palliative Care Research
- Health Education
Background:
- Public education on palliative care is crucial for developing effective strategies.
- A robust evidence base is needed to understand public knowledge and identify subgroup differences.
Purpose of the Study:
- To assess the level of public knowledge regarding palliative care.
- To identify factors associated with palliative care knowledge.
- To examine the congruence between self-perceived and actual knowledge.
Main Methods:
- Cross-sectional population-based survey conducted in Flanders, Belgium.
- Mail questionnaires administered to 4400 citizens (aged ≥16 years).
- Palliative Care Knowledge Scale (PaCKS) used to measure knowledge; sociodemographic and experiential factors analyzed.
Main Results:
- 2008 citizens responded (45.6% response rate).
- Mean PaCKS score was 7.87 (SD 3.41).
- High correct response on palliative care not being for older adults (84.7%); low on improving daily life participation (32.1%).
- Higher knowledge associated with age (30-59), non-religious, higher education, healthcare experience, and personal experience.
- 52.4% underestimated their knowledge.
Conclusions:
- Public possesses basic palliative care awareness but lacks knowledge on key aspects.
- Educational strategies should focus on specific knowledge deficits rather than general concepts.
- Community-based and experience-based approaches show potential for targeted palliative care education.
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