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Transgender People's Experiences Sharing Information With Clinicians: A Focus Group-Based Qualitative Study
Ash B Alpert1,2,3, Jamie E Mehringer4, Sunshine J Orta5
1Yale Cancer Center, Yale School of Medicine, New Haven, Connecticut (A.B.A.); ash.alpert@yale.edu.
Annals of Family Medicine
|September 25, 2023
Summary
Transgender individuals often face stigma or suboptimal care when sharing health information. Systemic changes in medical culture and data collection are crucial for improving transgender patient safety and quality of care.
Area of Science:
- Qualitative research
- Family medicine
- Health services research
Background:
- Transgender individuals' experiences in healthcare are under-researched.
- Effective communication of health information is vital for quality care.
Purpose of the Study:
- To explore transgender adults' experiences sharing health information during clinical encounters.
- To identify barriers and facilitators for safe and effective healthcare for transgender patients.
Main Methods:
- Qualitative study utilizing community-based participatory research.
- Seven focus groups conducted with 30 transgender adults in North America.
- Interpretive description methodology with thematic analysis and member checking.
Main Results:
- Transgender individuals perceive some clinician questions as stigmatizing or voyeuristic.
- Patients reported pathologization, substandard care, or harm upon disclosure of transgender status.
- A conflict exists between risking stigma and ensuring comprehensive medical information sharing.
- Improving safety for transgender people is challenging within current medical systems.
Conclusions:
- Transgender people often navigate a difficult choice between stigma and potentially suboptimal care.
- Enhancing medical culture, policies, and data collection tools is essential for improving transgender healthcare.
- Institutional and systemic changes are necessary for safe and effective sexual orientation and gender identity (SOGI) data collection.
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