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Social Stigma in Children with Long COVID
Danilo Buonsenso1,2, Anna Camporesi3, Rosa Morello1
1Department of Woman and Child Health, Fondazione Policlinico Universitario A. Gemelli IRCCS, 00168 Rome, Italy.
Children (Basel, Switzerland)
|September 28, 2023
Summary
Children with Long COVID experience significant stigma, feeling embarrassed and devalued. This research highlights the need for greater public and healthcare awareness regarding the social impact of pediatric Long COVID.
Area of Science:
- Pediatric Health
- Infectious Diseases
- Social Psychology
Background:
- Adults with Long COVID report experiencing stigma.
- The social impact of Long COVID in children remains under-investigated.
Purpose of the Study:
- To investigate the presence and nature of stigma experienced by children with Long COVID.
Main Methods:
- A cohort of children with prior SARS-CoV-2 infection completed an online Long COVID Stigma Scale survey.
- Pediatricians diagnosed Long COVID based on WHO criteria, unaware of survey responses.
- Stigma scores were compared between children diagnosed with Long COVID and those fully recovered.
Main Results:
- Children with Long COVID reported significantly higher levels of embarrassment, feeling devalued, and social isolation.
- They also experienced perceptions of disbelief from others regarding their diagnosis and felt less respected.
- Participants with Long COVID frequently felt others viewed their condition as not real or a sign of weakness.
Conclusions:
- Children diagnosed with Long COVID experience significant stigmata, mirroring adult experiences.
- These findings underscore the need for public, policymaker, and healthcare professional awareness and action regarding pediatric Long COVID.
- Addressing stigma is crucial for the holistic care of children affected by Long COVID.
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