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Three-Year Post-Neonatal Intensive Care Unit Health Care Utilization Among Infants with Congenital Anomalies
Nicole Welke1, Joanne Lagatta2, Steven Leuthner2
1Department of Pediatrics, University of Minnesota, Minneapolis, MN.
The Journal of Pediatrics
|October 18, 2023
Summary
Children with congenital anomalies experience high healthcare use post-neonatal intensive care unit (NICU) discharge, including frequent readmissions and surgeries. Those with complex conditions or needing durable medical equipment (DME) face the greatest risks.
Area of Science:
- Pediatric Health Outcomes
- Congenital Anomalies Research
- Healthcare Utilization Studies
Background:
- Neonatal intensive care unit (NICU) graduates with congenital anomalies represent a vulnerable population requiring ongoing medical support.
- Understanding long-term healthcare needs is crucial for optimizing care transitions and resource allocation.
Purpose of the Study:
- To delineate 3-year healthcare utilization patterns in children with congenital anomalies after discharge from a level IV NICU.
- To identify specific anomaly types and associated factors linked to increased healthcare use.
Main Methods:
- Retrospective chart review of infants with congenital anomalies from a level IV NICU.
- Analysis of hospital readmissions, surgical procedures, and durable medical equipment (DME) use up to 3 years post-discharge.
- Stratification of outcomes by anomaly type.
Main Results:
- Over half of the children experienced readmissions within the first two years, with one-third readmitted in the third year.
- Approximately 50% underwent surgeries, and 62% received DME at discharge, most commonly gastrostomy tubes.
- Higher readmission rates were observed for multiple, musculoskeletal, and central nervous system anomalies compared to abdominal-wall defects.
Conclusions:
- Children with congenital anomalies exhibit significant healthcare utilization in early childhood, necessitating proactive management.
- Factors such as multiple anomalies, genetic syndromes, and reliance on DME predict higher healthcare needs.
- Enhanced family support, discharge training, and telehealth integration are recommended strategies to mitigate risks.

