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Search Engines to Capture Missing Deaths From Institutional Data Warehouse
Yash S Dayal1, Dennis G Foster2, Yilun Hao3
1Departments of Neuroscience and Behavioral Biology and Quantitative Theory and Methods (Undergraduate), Emory University College of Arts and Sciences, Atlanta, Georgia.
Insights
Institutional databases under-report patient deaths. Integrating online search engines like Find a Grave significantly improves mortality capture, enhancing patient data accuracy.
Area of Science:
- Health Informatics
- Biostatistics
- Medical Record Management
Background:
- Mortality is a critical endpoint in clinical research and practice.
- Existing institutional databases often under-report patient deaths.
- Accurate mortality data is essential for comprehensive patient care and research.
Purpose of the Study:
- To quantify under-reported patient deaths in institutional databases.
- To compare the effectiveness of online mortality search engines versus institutional data warehouses in capturing patient deaths.
- To assess the utility of integrating external search engines for improved mortality data collection.
Main Methods:
- Utilized patient demographic data (first/last name, date of birth) for 134 individuals.
- Searched online mortality databases (e.g., Find a Grave Index, US Cemetery and Funeral Home Collection) and institutional data warehouses.
- Compared mortality records identified through online searches with those from the institutional data warehouse.
Main Results:
- The institutional data warehouse identified only about one-third of total patient mortalities.
- The Find a Grave Index captured the most patient deaths missed by the institutional data warehouse, second only to the Social Security Death Index.
- Online search engines significantly augmented the capture of patient deaths compared to institutional records alone.
Conclusions:
- Integrating readily available online mortality search engines into institutional data warehouses enhances the accuracy of patient death records.
- This approach is particularly valuable for capturing deaths occurring outside of index operative admissions.
- The findings support the use of this method for improved patient outreach and mortality reporting.
Introduction:
Clinical publications use mortality as a hard end point. It is unknown how many patient deaths are under-reported in institutional databases. The objective of this study was to query mortality in our patient cohort from our data warehouse and compare these deaths to those identified in different databases.
Methods:
We passed the first/last name and date of birth of 134 patients through online mortality search engines (Find a Grave Index, US Cemetery and Funeral Home Collection, etc.) to assess their ability to capture patient deaths and compared that to deaths recorded from our institutional data warehouse.
Results:
Our institutional data warehouse found approximately one-third of the total patient mortalities. After the Social Security Death Index, we found that the Find a Grave Index captured the most mortalities missed by the institutional data warehouse. These results highlight the advantages of incorporating readily available search engines into institutional data warehouses for the accurate collection of patient mortalities, particularly those that occur outside of index operative admission.
Conclusions:
The incorporation of the mortality search engines significantly augmented the capture of patient deaths. Our approach may be useful for tailored patient outreach and reporting mortalities with institutional data.
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