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A Qualitative Study of Parents' Experiences of Bonding in End-of-Life Care in a Neonatal Intensive Care Unit

Eva-Lotta Funkquist1, Alva Lindquist, Ann Edner

  • 1Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.

The Journal of Perinatal & Neonatal Nursing
|November 15, 2023
PubMed

Insights

Parents

Area of Science:

  • Neonatal care
  • Parental bonding
  • Grief and loss

Background:

  • Seriously ill newborns require intensive care.
  • Parental bonding is crucial during the neonatal period.
  • Understanding parental experiences with infant mortality is essential.

Purpose of the Study:

  • To explore parents' bonding experiences with critically ill newborns who did not survive.
  • To identify factors influencing parental bonding in neonatal intensive care units (NICUs).

Main Methods:

  • Qualitative study involving 7 interviews with 10 parents.
  • Inductive and deductive content analysis, guided by attachment theory.

Main Results:

  • Parental bonding is influenced by the relationship with healthcare providers, facilitating communication and parental involvement.
  • Parents desire to fulfill their protective role and participate in care for their well-being.
  • Parents experience shattered expectations, shame, and powerlessness when facing infant loss.

Conclusions:

  • The parent-healthcare provider relationship significantly impacts parental bonding and overall healthcare experiences.
  • Supporting parents' roles in care can improve their bonding and coping mechanisms.
Abstract

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