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In Their Own Voices; Living with Hidradenitis Suppurativa: A Qualitative Study
Nihan Durgu1, Erol Ozan, Gulsum Gencoglan
1At Manisa Celal Bayar University, Manisa, Turkey, Nihan Durgu, PhD, is Assistant Professor, Department of Mental Health Nursing, Faculty of Health Sciences; Erol Ozan, MD, is Associate Professor, Department of Psychiatry, School of Medicine; and Gulsum Gencoglan, MD, is Professor, Department of Dermatology, School of Medicine. Acknowledgment: The authors thank the patients who took the time to talk about their experiences. The authors have disclosed no financial relationships related to this article. Submitted November 7, 2022; accepted in revised form January 20, 2023.
Objective:
To provide a deeper assessment of the lived experience of patients with hidradenitis suppurativa, a chronic inflammatory disorder characterized by recurrent abscess, sinuses, and scars.
Methods:
This study used a phenomenologic approach. Researchers recruited 10 participants via purposive sampling. Data were collected via semistructured, in-depth, face-to-face interviews, and interpretative phenomenologic analysis was performed.
Results:
Data analysis uncovered two primary themes among participants' interview responses: "unending symptoms" and "life becoming hard."
Conclusions:
The symptoms of hidradenitis suppurativa negatively affect individuals' family, professional, and daily lives, and patients may benefit from psychiatric intervention.
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