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Systemic strengths and needs in palliative home care: exploring complexity
X Busquet-Duran1, B Mateu-Carralero2, J Bielsa-Pascual3
1Programa d'Atenció Domiciliària Equip de Suport (PADES), Servei d'Atenció Primària Vallès Oriental, Institut Català de la Salut, Barcelona, Spain; Unitat de Suport a la Recerca Metropolitana Nord (USR-MN), Institut Universitari per a la Recerca a l'Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol), Barcelona, Spain; Grupo de Investigacion Multidisciplinar en Salud y Sociedad GREMSAS, Barcelona, Spain.
Systemic strengths, including team and caregiver support, significantly influence where end-of-life patients die at home. A systemic approach is vital for improving palliative home care.
Area of Science:
- Palliative Care
- Gerontology
- Sociology
Background:
- Home care for end-of-life patients presents complex challenges.
- Understanding factors influencing place of death is crucial for quality palliative care.
Purpose of the Study:
- To investigate the relationship between systemic strengths and the complexity of end-of-life home care.
- To determine how different systemic levels (exosystem, microsystem, chronosystem) impact patient outcomes.
Main Methods:
- Quantitative descriptive longitudinal study involving 4600 home care patients.
- Complexity assessed using the HexCom model; place of death analyzed.
- Pearson's chi-square test used for statistical analysis.
Main Results:
- 59.7% of patients died at home; 53% had severe functional dependence.
- Exosystem (team) strength (OR: 4.07) and caregiver strength (OR: 3.90) positively influenced home death.
- Patient (microsystem) strength (OR: 0.51) and chronosystem (OR: 2.22) also showed significant associations.
Conclusions:
- A systemic perspective, considering patient and caregiver strengths, is essential for effective end-of-life home care.
- Bronfenbrenner's systemic framework can guide clinical practice in palliative care.
- Identifying and leveraging systemic strengths can improve care and support for dying patients at home.
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