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Pediatric palliative care across continents: Communication and shared-decision-making.
Chantal Y Joren1, Judith L Aris-Meijer1, A A Eduard Verhagen1
1University of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, the Netherlands.
Current Problems in Pediatric and Adolescent Health Care
|December 28, 2023
Summary
Pediatric palliative care faces challenges in shared decision-making. Understanding cultural differences in end-of-life care planning is crucial for global collaboration.
Area of Science:
- Medicine
- Healthcare Management
- Bioethics
Background:
- Pediatric palliative care has seen global growth.
- Shared decision-making in pediatric palliative care presents significant challenges.
- Effective care planning requires integrating medical facts with family values.
Purpose of the Study:
- To highlight the importance of shared decision-making in pediatric palliative care.
- To underscore the cultural variability in end-of-life care discussions.
- To advocate for comparative studies of global practices.
Main Methods:
- This study is a conceptual analysis and review of existing literature.
- It synthesizes current understanding of shared decision-making in pediatric palliative care.
- It emphasizes the need for cross-cultural comparisons.
Main Results:
- Shared decision-making is complex and influenced by diverse cultural contexts.
- Cultural interpretations of palliative care and end-of-life decisions vary significantly.
- A unified approach to shared decision-making is challenged by cultural differences.
Conclusions:
- Addressing challenges in shared decision-making is vital for advancing pediatric palliative care globally.
- Cross-cultural research is essential to understand and adapt practices worldwide.
- Respecting diverse values is key to effective pediatric palliative care planning.
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