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Piloting a Patient Tool to Aid Palliative Care Referrals during Advanced Lung Cancer Treatment
Laurie E McLouth1, Jerod L Stapleton2, Vilma Bursac3
1Department of Behavioral Science, College of Medicine, University of Kentucky, Lexington, Kentucky, USA; Center for Health Equity Transformation, University of Kentucky, Lexington, Kentucky, USA; Markey Cancer Center, University of Kentucky, Lexington, Kentucky, USA.
A new web-based tool effectively educates advanced lung cancer patients about palliative care, addressing misconceptions and increasing motivation for early discussions with oncologists.
Area of Science:
- Oncology
- Palliative Care
- Health Informatics
Background:
- Patient misperceptions about palliative care create barriers to timely discussions and referrals during advanced lung cancer treatment.
- Addressing these misperceptions is crucial for improving patient care and outcomes.
Purpose of the Study:
- To develop and evaluate the acceptability of a web-based patient-facing palliative care education and screening tool.
- The tool is designed for a multilevel intervention targeting patients, clinicians, and healthcare systems.
Main Methods:
- Feedback was gathered from advanced lung cancer patients, oncology and palliative care clinicians, and a clinic administrator.
- A prototype patient-facing tool was tested for acceptability, appropriateness, and feasibility with advanced lung cancer patients.
Main Results:
- The developed tool was rated highly for acceptability (4.48/5), appropriateness (4.37/5), and feasibility (4.43/5) by patients.
- Post-use, 75% of patients expressed interest in palliative care, and 80% felt more motivated to discuss it with their oncologist.
- 100% of patients with prior misperceptions about palliative care (e.g., confusing it with hospice) resolved these after using the tool.
Conclusions:
- The web-based palliative care education and screening tool is well-accepted by patients.
- The tool shows potential in correcting palliative care misperceptions and encouraging early discussions during cancer treatment.
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