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Defining dignity at the intersection of disability: a scoping review.
Kelsey Chapman1,2, Angel Dixon1, Elizabeth Kendall1,2
1Inclusive Futures, Griffith University, Nathan, Queensland, Australia.
Defining dignity for people with disabilities requires inclusive research. Current definitions lack consensus and fail to incorporate the perspectives of individuals with disabilities, hindering relevant interventions and policies.
Area of Science:
- Disability Studies
- Social Sciences
- Healthcare Research
Background:
- Dignity is a critical concept for individuals with disabilities.
- Understanding dignity is essential for developing effective support and policies.
- Existing definitions of dignity in disability contexts require clarification.
Purpose of the Study:
- To define dignity in the context of disability.
- To review the use of inclusive research methods in developing these definitions.
Main Methods:
- Scoping literature review using Arksey and O'Malley framework.
- Searched five electronic databases for relevant peer-reviewed studies.
- Employed narrative synthesis and qualitative content analysis.
Main Results:
- 22 qualitative studies were included, focusing on diverse disability populations.
- 19 studies defined dignity, but consensus was lacking.
- Definitions often focused on utilitarian aspects (affordances/barriers) with limited theoretical engagement.
- No studies reported using inclusive research methods.
Conclusions:
- The lack of inclusive research prevents the development of universally accepted dignity definitions for people with disabilities.
- Integrating theoretical and empirical perspectives is vital for a comprehensive and inclusive definition of dignity.
- Informed definitions can guide interventions and policies to enhance dignity for people with disabilities.
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