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Oncology Patient Portal: Understanding User's Needs and Expectations
Giuliana Colussi1, Juan Descalzo1, Agustín Paoloni1
1Instituto Alexander Fleming, Cramer 1180 CABA, Argentina.
Studies in Health Technology and Informatics
|January 25, 2024
Summary
Patients desire a unified platform for clinical and administrative data, timely access to records, and clearer guidance for treatments and appointments at the Alexander Fleming Institute (IAF). This feedback informs patient portal enhancements.
Area of Science:
- Health Informatics
- Patient Experience Research
- Digital Health Systems
Background:
- Patient-centered care necessitates effective information systems.
- The Alexander Fleming Institute (IAF) sought to understand user needs for its patient portal.
Purpose of the Study:
- To explore patient needs and expectations for information systems at IAF.
- To prioritize improvements for the IAF patient portal based on user feedback.
Main Methods:
- Content analysis of textual comments from patient satisfaction surveys (November 2021 - April 2022).
- Identification of emerging themes regarding patient information system requirements.
Main Results:
- Patients require integrated clinical and administrative information on a single platform.
- There is a need for timely access to clinical documentation and clearer pre-procedure/treatment information.
- Patients requested in-app appointment queue functionalities and accessible information on complementary oncological treatments.
Conclusions:
- Patient feedback is crucial for designing and improving digital health ecosystems.
- The study identified key areas for enhancing the IAF patient portal to meet user expectations.
- Findings will guide the development of a patient portal improvement plan and digital strategy.
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