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Author Spotlight: Capturing Infant-Caregiver Interactions Through Synchronized Multimodal Data Collection
Published on: May 31, 2024
884
Exploring fathers' experiences of caring for a child with complex care needs through ethnography and arts-based
Roberta L Woodgate1, Miriam Gonzalez2, Jacquie D Ripat3
1College of Nursing, Rady Faculty of Health Sciences, University of Manitoba, 89 Curry Place, Winnipeg, MB, R3T 2N2, Canada. Roberta.Woodgate@umanitoba.ca.
BMC Pediatrics
|February 2, 2024
Summary
Fathers actively support children with complex care needs (CCN) by adapting environments and engaging in care. Recommendations focus on parental support, authentic communication from providers, and policy changes for CCN families.
Area of Science:
- Pediatrics
- Family Studies
- Sociology
Background:
- Increasing global prevalence of children with complex care needs (CCN).
- Limited research on fathers' experiences caring for children with CCN.
- Study examines Canadian families' societal participation.
Purpose of the Study:
- To explore fathers' experiences caring for children with CCN.
- To identify fathers' contributions to their child's care and societal participation.
- To generate recommendations for parents, service providers, and policymakers.
Main Methods:
- Qualitative ethnography and arts-based methodologies (ecomaps, photovoice).
- Purposive and snowball sampling.
- Interviews with 29 fathers (ages 28-55) and four parent advisors.
- Iterative data analysis involving theme refinement.
Main Results:
- Overarching theme: fathers strive to be present for their child with CCN.
- Supporting themes: contributing to the parental team, building accessibility, engaging in activities, expressing pride, and meaning-making.
- Recommendations: nurture connections, ask for help (parents); communicate authentically, listen (providers); prioritize leadership and funding (policymakers).
Conclusions:
- Fathers are actively involved in care and development, enhancing child participation in daily life.
- Identified policy priorities: accessible physical environments.
- Highlighted need for collaborative care teams with fathers and complex care teams in adult healthcare.
- Noted implications for psychosocial support and areas for future research (diversity, intersectionality).
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