Multidisciplinary Endocrine Tumor Board: Assessment of the Patient Experience

Area of Science:

• Oncology
• Patient Experience Research
• Healthcare Management

Background:

• Tumor boards are crucial for cancer care coordination and patient outcomes.
• Limited research exists on the patient's perspective of tumor board discussions.

Purpose of the Study:

• To investigate patient experiences with multidisciplinary endocrine tumor boards (ETBs).
• To assess patient satisfaction, anxiety levels, and desire for participation in ETB discussions.

Main Methods:

• A 15-item survey was administered to patients over 18 whose cases were discussed at an ETB.
• Data collected over 18 months from patients using an online portal.
• Descriptive statistics and Fisher's exact test were employed for analysis.

Main Results:

• 72% of patients reported their provider explained the ETB, and 77% were informed their case would be discussed.
• While 72% were satisfied with their case being discussed, 15% reported moderate to severe anxiety.
• 66% expressed interest in participating in their own ETB discussion.

Conclusions:

• Patients generally feel positive about their cases being discussed at an ETB, leading to increased treatment plan confidence.
• Patient anxiety is a factor, and a significant desire exists for patient involvement in tumor board discussions.
• Findings highlight the need to address patient concerns and explore opportunities for patient participation in multidisciplinary tumor boards.