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Qualitative Study on Internet Use and Care Impact for Black Men With Prostate Cancer
Stacy Loeb1,2, Tatiana Sanchez Nolasco1, Nataliya Byrne1
1New York University Langone Health, New York, NY, USA.
Summary
Black men with prostate cancer (PCa) commonly use the internet for information. While it can empower decision-making, poor quality or overuse may increase anxiety and negatively impact care.
Area of Science:
- Oncology
- Health Informatics
- Patient Experience
Background:
- Black men face higher prostate cancer (PCa) risks and poorer outcomes.
- Internet use for health information is prevalent, but its impact on PCa patients, especially Black men, is under-explored.
- Higher decisional regret is linked to internet-based information seeking in PCa patients.
Purpose of the Study:
- To explore Black patients' perspectives on using the internet for prostate cancer (PCa) care.
- To understand the perceived impact of online information on PCa patient decision-making and well-being.
Main Methods:
- Seven virtual focus groups conducted with 22 Black patients diagnosed with prostate cancer (PCa) between 2022-2023.
- Focus group transcripts were analyzed using a constant comparative method by two independent researchers.
- Qualitative analysis explored themes related to online information seeking and its effects.
Main Results:
- Participants frequently used online resources throughout their prostate cancer (PCa) journey, with needs evolving over time.
- Family members actively assisted in online information seeking; internet use occurred before and after medical appointments.
- Benefits included empowerment and reduced anxiety, but challenges involved information overload, quality assessment, and potential overuse leading to anxiety and sleep loss.
Conclusions:
- The internet offers potential benefits for prostate cancer (PCa) patients by supplementing healthcare provider information and empowering decisions.
- However, risks associated with poor-quality, non-representative online content, or overuse can negatively affect patient outcomes and well-being.
- Careful navigation and critical appraisal of online resources are crucial for maximizing benefits and mitigating harms in prostate cancer care.
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