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Related Concept Videos

Clinical Trials01:16

Clinical Trials

6.7K
Clinical trials are prospective experimental studies conducted on humans to determine the safety and efficacy of treatments, drugs, diet methods, and medical devices. Using statistics in clinical trials enables researchers to derive reasonable and accurate conclusions from the collected data, allowing them to make wise decisions in uncertain situations. In medical research, statistical methods are crucial for preventing errors and bias.
There are four phases in a clinical trial. A phase one...
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Statistical Software for Data Analysis and Clinical Trials01:12

Statistical Software for Data Analysis and Clinical Trials

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Statistical software is pivotal in data analysis and clinical trials by providing tools to analyze data, draw conclusions, and make predictions. These software packages range from simple data management applications to complex analytical platforms, supporting various statistical tests, models, and simulation techniques. Their significance lies in their ability to handle vast amounts of data with precision and efficiency, enabling researchers to validate hypotheses, identify trends, and make...
547
Nursing Clinical Information System01:27

Nursing Clinical Information System

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Nursing Clinical Information System (NCIS)
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
773
Types of Biopharmaceutical Studies: Controlled and Non-Controlled Approaches01:23

Types of Biopharmaceutical Studies: Controlled and Non-Controlled Approaches

126
Biopharmaceutical studies constitute a vital field aiming to enhance drug delivery methods and refine therapeutic approaches, drawing upon diverse interdisciplinary knowledge. In research methodologies, the choice between controlled and non-controlled studies significantly influences the study's reliability and accuracy.
Non-controlled studies, commonly employed for initial exploration, lack a control group, rendering them susceptible to biases and external influences. In contrast,...
126
Issues And Trends In Healthcare Delivery System01:29

Issues And Trends In Healthcare Delivery System

5.6K
The issues and trends in healthcare delivery are constantly changing. The COVID-19 pandemic is one recent issue that wreaked havoc on healthcare systems, causing a shortage of healthcare workers, high demand for medicines and supplies, and increased medical expenditure due to a lack of insurance. Other issues include rising healthcare costs and care fragmentation.
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
5.6K
Observational Studies01:11

Observational Studies

8.5K
Observational studies are a type of analytical study where researchers observe events without any interventions. In other words, the researcher does not influence the response variable or the experiment's outcome.
There are three types of observational studies – Prospective, retrospective, and cross-sectional.
Prospective Study
Prospective studies, also known as longitudinal or cohort studies, are carried out by collecting future data from groups sharing similar characteristics. One...
8.5K

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Updated: Jun 30, 2025

Establishment of a Clinic-based Biorepository
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Establishment of a Clinic-based Biorepository

Published on: May 29, 2017

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Developing Crowdsourced Clinical Registry Studies.

Carolynn Thomas Jones1, Jeremy Walker, Rachel L McMullen

  • 1Carolynn Thomas Jones is clinical professor and director of the Master of Clinical Research Program at The Ohio State University College of Nursing in Columbus. Jeremy Walker is an assistant professor at the University of Alabama Birmingham School of Medicine, where Rachel L. McMullen is a clinical trials specialist and Peter G. Pappas is a professor of medicine. Contact author: Carolynn Thomas Jones, jones.5342@osu.edu . Article development was supported by National Center for Advancing Translational Sciences Grants No. UL1TR002733 and No. UM1TR004548. The authors wish to acknowledge Jeremy Gold, MD, MS, medical epidemiologist at the Centers for Disease Control and Prevention (CDC), for his guidance regarding study methodology. The authors were funded in part by CDC Cooperative Agreement No. CDC-RFA-CK20-2003. The findings of this report are those of the authors and do not necessarily represent the official position of the CDC.

The American Journal of Nursing
|March 21, 2024
PubMed
Summary
This summary is machine-generated.

Crowdsourced registries rapidly collect vital public health data, aiding research on COVID-19 outcomes and experimental treatments. This methodology enhances clinical research nurse skills for future health concerns.

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Area of Science:

  • Public Health
  • Clinical Research
  • Data Science

Background:

  • Crowdsourced registries are valuable for rapid data collection during public health emergencies.
  • Registries established during the COVID-19 pandemic addressed critical questions on coinfections, treatments, and outcomes.
  • The use of registries is expanding to support clinical trials and long-term patient outcome tracking.

Conclusions:

  • Registry methodology is a transferable skill set for nurse researchers.
  • Effective planning, execution, and analysis are crucial for successful registries.
  • Crowdsourced registries provide a powerful tool for advancing public health research.