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Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy
Published on: January 12, 2019
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Pediatric Performance-Based Outcome Measures for Upper Extremity Function: A Scoping Review and Linking to the
Summary
This study identified common upper extremity performance-based outcome measures (PBOMs) used in pediatric rehabilitation. Most measures linked to the International Classification of Functioning, Disability and Health
Area of Science:
- Pediatric Rehabilitation
- Outcome Measurement
- Occupational Therapy
Background:
- Performance-based outcome measures (PBOMs) objectively assess physical capacity and task performance.
- PBOMs are crucial for evaluating functional improvements in pediatric rehabilitation.
Purpose of the Study:
- Identify frequently reported PBOMs for pediatric upper extremity (UE) function.
- Determine the link between PBOM concepts and the International Classification of Functioning, Disability and Health (ICF).
Main Methods:
- Systematic search of pediatric UE PBOMs across four databases.
- Inclusion criteria applied through title/abstract screening and full-text review.
- Independent concept extraction and linking to ICF by two reviewers.
Main Results:
- 32 PBOMs were included, with 538 items linked to the ICF.
- Assisting Hand Assessment, Jebsen-Taylor Hand Function Test, and Melbourne Assessment of Unilateral Upper Limb were most common.
- Activity and Participation domains (364 codes) were most frequently linked, followed by Body Functions (174 codes).
Conclusions:
- Most identified PBOMs align with ICF's Mobility and Fine Hand Use categories.
- Selection of PBOMs requires careful consideration of the specific health concepts being assessed.
Keywords:
Arrimage avec la Classification internationale du fonctionnementDisabilityEvaluation toolHand assessmentLinking International Classification of FunctioningOutcome measurePediatricUpper extremityUpper limband Healthdu handicap et de la santéextrémité superieuremembre supérieurmesure de résultatoutil d’évaluationpédiatrieévaluation de la main
