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Home symptom management training programme: carer evaluation
Deborah Parker1, Liz Reymond2,3, Karen Cooper2
1Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, University of Technology Sydney, Sydney, New South Wales, Australia.
BMJ Supportive & Palliative Care
|April 1, 2024
Summary
The caring@home education package significantly boosted carers' confidence and skills in managing palliative symptoms at home using subcutaneous medicines. This empowers more individuals to receive end-of-life care at home.
Area of Science:
- Palliative Care
- Home Healthcare
- Nursing Education
Background:
- Most patients prefer to die at home, but this requires adequate carer support for symptom management.
- Carers often lack the necessary education for managing complex medication regimens, including subcutaneous medicines.
- Untreated breakthrough symptoms can lead to increased suffering and hospital transfers.
Purpose of the Study:
- To assess the impact of the caring@home education and resource package on carers' confidence, knowledge, and skills.
- To evaluate the effectiveness of training in managing palliative symptoms at home using subcutaneous medicines.
Main Methods:
- Volunteer carers were trained by nurses on the caring@home package.
- Carers completed a 10-minute written evaluation survey.
- A subset of carers participated in a 30-minute semi-structured phone interview.
Main Results:
- Fifty carers completed surveys; 12 were interviewed.
- Most carers reported increased confidence, knowledge, and skills in managing breakthrough symptoms with subcutaneous medicines.
- Interviews highlighted themes of carer role adoption, layered support, and minimizing nurse contact.
Conclusions:
- The caring@home program effectively empowers carers to manage palliative symptoms at home.
- Clinical services can utilize this program to facilitate home-based end-of-life care.
- The package supports enabling patients to be cared for and die in their preferred home setting.
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