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Related Experiment Video

Updated: Jun 29, 2025

A Novel Digital Platform for a Monitored Home-based Cardiac Rehabilitation Program

A Novel Digital Platform for a Monitored Home-based Cardiac Rehabilitation Program

Published on: April 19, 2019

Home symptom management training programme: carer evaluation.

Deborah Parker¹, Liz Reymond^2,3, Karen Cooper²

¹Improving Palliative, Aged and Chronic Care through Clinical Research and Translation, University of Technology Sydney, Sydney, New South Wales, Australia.

BMJ Supportive & Palliative Care

|April 1, 2024

Summary

The caring@home education package significantly boosted carers' confidence and skills in managing palliative symptoms at home using subcutaneous medicines. This empowers more individuals to receive end-of-life care at home.

Keywords:

carers palliative care subcutaneous medicine symptom management

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Area of Science:

Palliative Care
Home Healthcare
Nursing Education

Background:

Most patients prefer to die at home, but this requires adequate carer support for symptom management.
Carers often lack the necessary education for managing complex medication regimens, including subcutaneous medicines.
Untreated breakthrough symptoms can lead to increased suffering and hospital transfers.

Purpose of the Study:

To assess the impact of the caring@home education and resource package on carers' confidence, knowledge, and skills.
To evaluate the effectiveness of training in managing palliative symptoms at home using subcutaneous medicines.

Main Methods:

Volunteer carers were trained by nurses on the caring@home package.
Carers completed a 10-minute written evaluation survey.
A subset of carers participated in a 30-minute semi-structured phone interview.

Main Results:

Fifty carers completed surveys; 12 were interviewed.
Most carers reported increased confidence, knowledge, and skills in managing breakthrough symptoms with subcutaneous medicines.
Interviews highlighted themes of carer role adoption, layered support, and minimizing nurse contact.

Conclusions:

The caring@home program effectively empowers carers to manage palliative symptoms at home.
Clinical services can utilize this program to facilitate home-based end-of-life care.
The package supports enabling patients to be cared for and die in their preferred home setting.