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Author Spotlight: Capturing Infant-Caregiver Interactions Through Synchronized Multimodal Data Collection
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Author Spotlight: Capturing Infant-Caregiver Interactions Through Synchronized Multimodal Data Collection

Published on: May 31, 2024

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"There is a strangeness in this disease": A qualitative study of parents' experiences caring for a child diagnosed

Samantha Louie-Poon1, Kathy Reid1, Priscilla O Appiah1

  • 1Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada.

Plos One
|April 2, 2024
PubMed

Insights

Caring for a child with COVID-19 (coronavirus disease 2019) involved parental uncertainty, anxiety, and social stigma. Parents need clear, consistent online information and community support to navigate these challenges.

Area of Science:

  • Pediatric Health
  • Public Health
  • Qualitative Research

Background:

  • The COVID-19 pandemic presented evolving guidelines and diagnostic criteria.
  • Limited research exists on parental experiences caring for children with COVID-19.
  • This study addresses the gap in understanding parental needs during the pandemic.

Purpose of the Study:

  • To explore parents' experiences and information needs when caring for a child diagnosed with COVID-19.
  • To identify key challenges faced by parents during the pandemic.

Main Methods:

  • Qualitative descriptive study utilizing an inductive and exploratory approach.
  • 27 participants recruited via social media and public health clinics.
  • Concurrent data collection and analysis with semi-structured virtual interviews and thematic analysis.

Main Results:

  • Four major themes emerged: dealing with uncertainty, anxiety, social stigma and stress, and a sense of community.
  • Parental experiences were diverse, multi-faceted, and evolved throughout the pandemic.
  • Parents reported significant emotional and social challenges.

Conclusions:

  • Parental experiences caring for children with COVID-19 are complex and varied.
  • Clear, consistent, evidence-based online information is crucial for parents.
  • Understanding parental perspectives is vital for developing targeted support resources.
Abstract

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