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Validity and reliability test of the Indonesian version of the PedHALshort questionnaire

Novie Amelia Chozie1, Dewi Rosariah Ayu2,3, Bernie Endyarni Medise1

  • 1Departement of Child Health, Cipto Mangunkusumo General Hospital, Faculty of Medicine Universitas Indonesia, Jakarta, Indonesia.

Haemophilia : the Official Journal of the World Federation of Hemophilia
|April 5, 2024
PubMed

Insights

The PedHALshort questionnaire is a valid and reliable tool for assessing the functional physical activity of children with haemophilia in Indonesia. This validated Indonesian version aids in measuring daily activities for better health outcomes.

Area of Science:

  • Pediatric Rheumatology
  • Hematology
  • Quality of Life Assessment

Background:

  • The PedHAL questionnaire measures activities in children with haemophilia.
  • The shorter PedHALshort version was developed to identify the most relevant assessment items.
  • The Haemo-QoL questionnaire assesses the quality of life in this pediatric population.

Purpose of the Study:

  • To determine the validity and reliability of the Indonesian language version of the PedHALshort.
  • To compare the PedHALshort with the Haemo-QoL questionnaire in Indonesian children with haemophilia.

Main Methods:

  • A cross-sectional study in Jakarta, Indonesia, included 50 children (4-16 years) with moderate/severe haemophilia A or B.
  • Daily activity was assessed using PedHALshort and Haemo-QoL.
  • Validity was tested using Pearson and Spearman correlations (convergent and discriminant), and reliability was assessed via test-retest and internal consistency (Cronbach's α).

Main Results:

  • All domains of the PedHALshort demonstrated validity (r > .284).
  • Convergent validity showed a moderate negative correlation with Haemo-QoL's physical health and sports domains (r = -.479).
  • High internal consistency was found (Cronbach's α = .85), indicating the PedHALshort is a reliable measure.

Conclusions:

  • The Indonesian version of the PedHALshort is a valid and reliable instrument.
  • It can be effectively used to measure the functional physical activity of children with haemophilia.
  • This tool supports better assessment and management of daily activities in pediatric haemophilia care.
Abstract

Keywords:
Haemo‐QLPedHALdaily activityhaemophiliaquestionnaires

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